Living with Systemic Juvenile Idiopathic Arthritis (sJIA)

Author: Gail Molyneaux I have lived with Systemic Juvenile Idiopathic Arthritis (sJIA), also known as Still’s Disease, since the age...

Are you being treated with steroids for your rheumatic condition?

Researchers at the University of the West of England would value your help to test a new questionnaire about steroid...

RACC – UK receives Level 2 Disability Confident: Employer

Autoinflammatory Conditions and COVID 19 Vaccine Recipients

The survey will take approximately 6 minutes to complete. About:Under the General Data Protection Regulations (GDPR, 2018) and the Data...

PFAPA and Genetic Testing Questionnaire – UK ONLY

The survey will take approximately 5 minutes to complete. This questionnaire is designed to explore the use of genetic testing...

UK Rare Disease Framework 2021

A framework setting out a coherent, national vision on how the UK will improve the lives of those living with...

RACC – UK receives Level 1: Disability Confident Committed

2020 Grant Impact – National Lottery Community Fund, COVID 19 Crisis Fund: £2,423

A huge thank you to the National Lottery Community Fund, COVID 19 Crisis Fund for £2423 in 2020. With this...

Jennifer’s Marathon for Rare Autoinflammatory Conditions

Raising funding and awareness for Rare Autoinflammatory Conditions Community – UK (RACC-UK) because My son has suffered hugely from a...

‘A Friend Named Effy’

Written by Adi Zelichov Illustrated by Tamar Moskowitz Medical consultation: Prof. Shai Padeh Language Counseling: Talia Hasson Translation: AQ Group...