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Children’s health risks becoming an afterthought, warn charities and Royal Colleges

Children’s health risks becoming an afterthought, warn charities and Royal Colleges

MEDIA RELEASE – MONDAY 4 NOVEMBER 2024 (Children’s health risks becoming an afterthought, warn charities and Royal Colleges) · Major...

Rare Disease Quality Statements (A survey)

Rare Disease Quality Statements (A survey)

What does good care and treatment for rare disease mean to you? The rare disease quality statement project is asking...

NHS commissioning: plans to April 2026

NHS commissioning: plans to April 2026

ITV News focus on failing education system for disabled children

ITV News focus on failing education system for disabled children

3 mins read Thursday 25 July 2024 Tags: SEND system, education ITV News is placing the spotlight on Special Educational Needs and...

Living with Systemic Juvenile Idiopathic Arthritis (sJIA)

Living with Systemic Juvenile Idiopathic Arthritis (sJIA)

Author: Gail Molyneaux Facebook Page I have lived with Systemic Juvenile Idiopathic Arthritis (sJIA), also known as Still’s Disease, since...

RACC – UK receives Level 2 Disability Confident: Employer

RACC – UK receives Level 2 Disability Confident: Employer

Autoinflammatory Conditions and COVID 19 Vaccine Recipients

Autoinflammatory Conditions and COVID 19 Vaccine Recipients

The survey will take approximately 6 minutes to complete. About:Under the General Data Protection Regulations (GDPR, 2018) and the Data...

PFAPA and Genetic Testing Questionnaire – UK ONLY

PFAPA and Genetic Testing Questionnaire – UK ONLY

The survey will take approximately 5 minutes to complete. This questionnaire is designed to explore the use of genetic testing...

‘A Friend Named Effy’

‘A Friend Named Effy’

Written by Adi Zelichov Illustrated by Tamar Moskowitz Medical consultation: Prof. Shai Padeh Language Counseling: Talia Hasson Translation: AQ Group...

Medics 4 Rare Diseases: A day in the life of a medical student during the pandemic.

Medics 4 Rare Diseases: A day in the life of a medical student during the pandemic.

Written by Chloe Bell, a fourth-year medical student at the University of Manchester.

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