07377 091552 info@raccuk.com

JOIN A VIRTUAL BALLOON RACE: RAISE FUNDS FOR RACC-UK🎈🎈🎈🎈🎈🎈

Buy a balloon (or several) in an imaginary, computer-simulated, balloon race which “launches” outside Harrods in London on 1st December....

‘The abilities in me’ book series, by Gemma Keir

‘The abilities in me’ book series, by Gemma Keir

Series of books available on Amazon suitable for children between the ages of 3 – 8 years old. After the...

BPSU study – Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) [2020]

BPSU study – Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) [2020]

“Surveillance of chronic recurrent multifocal osteomyelitis/chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu...

Why the charity was born

Why the charity was born

Although I have been symptomatic since birth with multiple admissions and surgeries, I did not receive my diagnosis until I...

Featured in: Health Europa

Featured in: Health Europa

Understanding rare autoinflammatory conditions during awareness month 24th September 2020 Thank you to Stephanie at Health Europa for this amazing...

Kindle Edition: FMF Super Heroes

Kindle Edition: FMF Super Heroes

FMF Super heroes by Megan Bryant (2018) “Aria is 6 years old and goes to kindergarten. She likes animals, dancing, camping...

Recurrent Idiopathic Pericarditis – Patient Experience 1

Recurrent Idiopathic Pericarditis – Patient Experience 1

“I was first afflicted with Pericarditis (inflammation of the pericardium the membrane that surrounds the heart) seven years ago. My...

The impact of Recurrent Idiopathic Pericarditis – Patient Experience 2

I was a busy Deputy Head, with a family and working approx 60 hours a week when out of the...

Abby has Arthritis

“Abby has Arthritis is a children’s book geared towards newly diagnosed kids to help them better understand what arthritis is...

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