Rare, Genetic and Undiagnosed Conditions. Parliamentary APPG’s
All-Party Parliamentary Groups
Purpose of the group
To increase awareness in Parliament of rare, genetic and undiagnosed conditions and help to ensure that patients and families affected by those conditions have access to appropriate care and support.
Purpose of the group
Act as a channel of communication between the Scottish Parliament and families affected by rare, genetic and undiagnosed conditions.
Act as a channel of communication between the Scottish Parliament and those working in the fields of research, treatment, care and prevention of rare, genetic and undiagnosed conditions.
Monitor and contribute to the implementation of the Scottish Plan for Rare Diseases in Scotland.
Identify areas where inequalities exist in provision of care for rare, genetic and undiagnosed conditions and campaigning for improvement.
Examine areas of health and social care policy or service provision relating to rare, genetic and undiagnosed conditions.
