Meet The Team
Board of Trustees
Non - Executive Volunteers
UK Autoinflammatory Charity for patients, parents and carers.
- Home
- About Us
- Autoinflammatory Conditions
- A20 Haploinsufficiency (HA20)
- Blau Syndrome
- Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
- Cryroprin Associated Periodic Fever Syndrome (CAPS) – NOMID / CINCA / MWS
- Dermatomyositis and Polymyositis
- Familial Mediterranean Fever (FMF)
- Mevalonate Kinase Deficiency (HIDS / MA)
- Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis (PFAPA)
- Recurrent Idiopathic Pericarditis
- Schnitzler Syndrome
- Systemic Juvenile Idiopathic Arthritis (sJIA)
- Systemic Lupus Erythematosus
- Tumor Necrosis Factor – Receptor Associated Periodic Fever Syndrome (TRAPS)
- UK’s Autoinflammatory Patient Registry
- Patient and Family Support
- Drug Consultations and Policies
- Patients Rights
- Fabrication or Induced Illness Awareness
- Receiving support from RACC – UK
- Periodic Fever Syndromes / Autoinflammatory – Genetic Testing in the UK
- Patient Handbook
- Hospitals
- Transition of Care: Adolescents
- Financial Support
- Mental Health and Wellbeing
- Educational Support
- Rare, Genetic and Undiagnosed Conditions. Parliamentary APPG’s
- Research Papers and Articles
- Gaming Community
- Kidz Space
- Blog
- ‘Raising Awareness About Autoinflammatory Conditions on a Global Scale’
- Are you being treated with steroids for your rheumatic condition?
- RACC – UK receives Level 2 Disability Confident: Employer
- Autoinflammatory Conditions and COVID 19 Vaccine Recipients
- PFAPA and Genetic Testing Questionnaire – UK ONLY
- UK Rare Disease Framework 2021
- Grant Impact – National Lottery Community Fund, COVID 19 Crisis Fund: £2,423
- Why the charity was born
- Recurrent Idiopathic Pericarditis – Patient Experience 1
- The impact of Recurrent Idiopathic Pericarditis – Patient Experience 2
- Abby has Arthritis
- Kindle Edition: FMF Super Heroes
- Featured in: Health Europa
- Mental Capacity Act (MCA) and the COVID-19 crisis
- BPSU study – Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) [2020]
- ‘The abilities in me’ book series, by Gemma Keir
- ‘A Friend Named Effy’
- Donate
- Login
- Register
