Frankie Dickens
Hello. My name is Frankie. I am a Trustee at RACC – UK overseeing the Finance and Business Development.
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- About Autoinflammatory Conditions
- A20 Haploinsufficiency (HA20)
- Blau Syndrome
- Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
- Cryroprin Associated Periodic Fever Syndrome (CAPS) – NOMID / CINCA / MWS
- Dermatomyositis and Polymyositis
- Familial Mediterranean Fever (FMF)
- Mevalonate Kinase Deficiency (HIDS / MA)
- Periodic Fever, Aphthous Stomatitis, Pharyngitis, Adenitis (PFAPA)
- Recurrent Idiopathic Pericarditis
- Schnitzler Syndrome
- Systemic Juvenile Idiopathic Arthritis (sJIA)
- Systemic Lupus Erythematosus
- Tumor Necrosis Factor – Receptor Associated Periodic Fever Syndrome (TRAPS)
- UK’s Autoinflammatory Patient Registry
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- Patient Experiences and Challenges in the Management of Autoinflammatory Diseases—Data from the International FMF & AID Global Association Survey (2024)
- Genetic Testing in England
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- Transition of Care: Adolescents
- Rare, Genetic and Undiagnosed Conditions. Parliamentary APPG’s
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- Blog
- NHS commissioning: plans to April 2026
- ITV News focus on failing education system for disabled children
- Living with Systemic Juvenile Idiopathic Arthritis (sJIA)
- ‘Raising Awareness About Autoinflammatory Conditions on a Global Scale’
- RACC – UK receives Level 2 Disability Confident: Employer
- Why the charity was born
- Recurrent Idiopathic Pericarditis – Patient Experience 1
- The impact of Recurrent Idiopathic Pericarditis – Patient Experience 2
- Abby has Arthritis
- Kindle Edition: FMF Super Heroes
- Featured in: Health Europa
- BPSU study – Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) [2020]
- ‘The abilities in me’ book series, by Gemma Keir
- ‘A Friend Named Effy’
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