07377 091552 info@raccuk.com

About Us

RACC is on a mission to support those living with Rare Autoinflammatory Disorders. Our strategy highlights 4 key objectives for the organisation and how we will achieve them.

  • Objective 1: To be a source of support for patients, parents and carers living with an Autoinflammatory condition
  • Objective 2: To campaign for policies that benefit patients allowing them to obtain a diagnosis and access the necessary treatments
  • Objective 3: To be a source of education on Autoinflammatory conditions including the emotional and physical effects of living with a Rare Autoinflammatory condition
  • Objective 4: To support research that advances the knowledge of rare autoinflammatory conditions

Meet the team

Rachel

Founder, Chairperson and Family Support

Rachel has living experience of an Autoinflammatory condition, and founded this Charity to help support other individuals. 

Meet Mark, the Patient Engagement Officer and Trustee. Mark has short black hair, wearing a beige jumper with a white t-shirt underneath and a lanyard around his neck. Mark is smiling

Mark

Patient Engagement & Trustee

Mark first joined RACC – UK as a non – executive volunteer in 2023. Mark oversees the Patient Engagement. In May 2024, Mark became a Trustee.

Frankie

Trustee for finance and business development

Frankie joined the team as a Trustee in May 2024. Frankie over sees the finance and business strategy of the organisation. 

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